Alzheimer's Disease: Living with John, Caring for a Love One
by Nellie Kidd-Madison
Olympus Story House


"Losing John was an eye opener for me, and made me realize just how quickly and easily a person can be lost."

Faced with strange behaviors and an eventual diagnosis that her husband was suffering from early-onset Alzheimer's Disease, the author of this book chronicles her care routines for her husband throughout the progression of his condition. The accounts collected in this book are personal and specific, often documenting Kidd-Madison's own fears and frustrations while never wavering in her dedication to John's well-being and care. At the same time that she recounts her own feelings and the story of the gradual yet sudden change to her life and marriage, the author also raises awareness for Alzheimer's detection, testing, research, and awareness, in the hopes that it can provide some support and companionship to the countless people whose lives are affected by this affliction.

When thinking of Alzheimer's, a common mistake is to only consider the symptoms of the disease in its later stages. However, the long, steady progression of the disease, as well as the techniques that can provide temporary stability as it develops, are documented in detail throughout each chapter. Ample attention is given to the warning signs and how they manifest in mood and behavioral changes, giving readers a clearer picture of when to seek medical diagnosis. This full-spectrum view of the disease shows the constant toll it takes, requiring the patient to limit more and more activities as it progresses. Going beyond the surface level and making the lessons personal, readers will be able to appreciate the amount of sacrifice and heartbreak that goes into ensuring a loved one maintains as much dignity and quality of life as possible despite the devastating effects of the disease.

While the author makes it very clear that no two cases of Alzheimer's are quite the same, the descriptions of helping her husband with various tasks at different stages of his condition will give readers and caretakers a sense of what to look for and how to address certain challenges. Alongside personal reflections on how the diagnosis changed both of their lives, there is practical, detailed advice on techniques and realizations that proved more effective for navigating daily routines. Topics on travel tips, hygiene, assisted care, and more are divided into chapters that read like the author's personal reflections rather than a textbook or step-by-step guide. Memories, anecdotes, the trial-and-error of discovering best practices, and the adjustments that needed to be made are all chronicled in a way that helps the reader to feel as if they have an ally and mentor in this process.

Most people are probably aware of the existence and general effects of Alzheimer's, but they may not be prepared to face the many ways it impacts every part of a person's life, as well as their caretaker's. This book takes a personal rather than a clinical approach, and it's impossible to read each chapter without engaging in the mental exercises of how one would react in the same circumstances. The honest, no-sugarcoating approach to relaying this information can be hard to read, especially for those familiar with the symptoms of Alzheimer's, but it's all the more effective in communicating through its straightforward style. To withhold some of the more unpleasant or devastating elements of caring for someone with Alzheimer's Disease would be doing a disservice to the mission of this book. Instead, the unvarnished truth laid out in the narrative of the author's journey inspires readers. Though it can be frustrating to experience, even vicariously, the loss of a loved one's autonomy, with a book like this available, the fear and isolation that come with it can be reduced, providing a welcome sense of comfort.

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